No, that is not a typo in the title! To somebody on dialysis for 4 hours 3 times a week, there are some important issues to address. Namely, a decent cup of tea (or two) and something to eat. Now I am not advocating a full blown menu here, and hugely extravagant culinary masterpieces. The debate comes down to why do we (in Peterborough) only get a ration of 3 biscuits for the dialysis session?

As you can see this is world changing stuff, and Twitter will ‘light up’ shortly on this issue when I tweet this in a few minutes time! It is the major debate, that, and a second cup of tea.

You see, some of us impossibly grumpy old patients travel, and so we get to see dialysis elsewhere, in private units and in other NHS units. Amazingly, everywhere else I have been (and others have been too), we have been treated to 2 cups of tea through the session, sandwiches, two helpings of toast, toasted sandwiches, decent cups of coffee and more. Nowhere has been stingey enough to just give you a pack of 3 biscuits.

Now I understand there are health and safety implications here. Apparently toasters are not allowed locally as nurses set fire to the buildings, sandwiches are out as they are not allowed to brandish sharp implements, tea (1 cup) now has to come in a specified holder in a paper cup as the use of a dishwasher will affect global warming (so no mugs), and the budget ultimately has to come from somewhere (apparently). 

So, consider me and all the other patients in Peterborough who will be excitedly looking forward to the small cup of plastic tea and three biscuit ration 3 times a week, but alas, no sandwiches ( I wish….)

Footnote: To add insult to injury, the old tea trolley with the wonky wheel has been replaced, so the exciting chink of mugs as the trolley makes its way towards you has now gone.  So, back to gazing at the ceiling…….

Tags: entertainment on dialysis, food

There is no doubt, and much research shows, that nocturnal dialysis, using single needle but extended sessions every day, or 6 out of 7, has huge beneficial effects, almost removing any recovery time, and dramatically changing the impacts on your body of ‘clean’ and ‘dirty’ blood cycles, which for some patients results in a pattern of feeling better or worse during their average week.

The NHS is meant to be actively promoting the extension of home hemo and self care in general, although the localised management and enthusiasm to achieve this appears to be mixed by region.

There can be many barriers to encouraging patients to become self caring. Some of these are emotional, some are practical. However, an intelligent approach to achieving self care whether on your own at home or even in a unit, including offering overnight hemo daily dialysis, is needed that can be applied countrywide. Areas to consider are very simple preparation of machines and needles etc for those that are reluctant to needle themselves, to self caring on a unit where the patient either cannot go home for practical reasons, or simply for lack of a carer at home. Beyond this of course, then home hemo is the real winner as this allows daily dialysis, but of course, nocturnal daily dialysis would open up huge benefits for many also.

Most UK dialyis units are standing idle overnight, so how about a concerted programme of daily nocturnal dilaysis combined with self preparation? Yes, there are issues of staff coverage, costs, but for many this will provide an improved dialysis regime with better health benefits. For those that can or are able to go home, then encouraging daily dialysis either as a night time function or during the day if they can work from home at the same time, is a potential no-brainer, but needs motivation to establish the programme.

It is clear that more could be done for a majority of hemo patients and involve many of them more closely in their treatment, so who do we turn to to get this moving more effectively? Locally it needs motivated and innovative managers, doctors and senior nursing staff to get things moving, but they should be backed by a top down drive to do better in this area. So, NHS, more than just a target, how about concerted action? How about involving patients and patient groups in the development – believe it or not, but many of your patients have brains and excellent business experience – use this free resource to help.

So, the shopping list is:

• Teach preparation
• Teach self care on the units
• Actively recruit more for home hemo and use innovative technologies to get over provision of equipment issues.
• Develop nocturnal facilites around the UK – improve health as a result
• Encourage daily dialysis for all home hemo patients with a pattern of treatment to suit the individual life style.

Clock’s ticking, let’s get started……

Tags: daily dialysis, dialysis, home hemo, nocturnal dialysis, self-care